Bills/H.R. 5178

Sickle Cell Disease Comprehensive Care Act

Sickle Cell Disease Comprehensive Care Act

In CommitteeHealthcareHouseHouse Bill · 119th Congress
Bill Progress · House
Introduced
Committee
Passed House
Passed Senate
Passed Both
Signed

Plain Language Summary

# Sickle Cell Disease Comprehensive Care Act Summary **What the Bill Does** This bill would allow state Medicaid programs to create "health homes"—coordinated care centers specifically for people with sickle cell disease. These health homes would bring together different types of medical care in one place, including dental and vision services along with regular medical treatment. Currently, states can set up similar care centers for other chronic conditions, but sickle cell disease isn't included.

The bill also requires the federal Centers for Medicare & Medicaid Services to provide guidance to states on how to set up and run these health homes effectively. **Who It Affects** The bill primarily affects people with sickle cell disease who rely on Medicaid (the government health program for low-income individuals and families). Sickle cell disease disproportionately affects African Americans and requires ongoing, specialized medical care. The bill would also impact state Medicaid programs, which would have the option to create these coordinated care systems. **Current Status** The bill was introduced by Representative Neal Dunn (R-FL) and is currently in committee, meaning it hasn't yet been voted on by the full House of Representatives.

CRS Official Summary

Sickle Cell Disease Comprehensive Care ActThis bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.

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Latest Action

September 8, 2025

Referred to the House Committee on Energy and Commerce.

Sponsor

26 cosponsors

Key Dates

Introduced
September 8, 2025
Last Updated
September 8, 2025
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